International Vasa Previa Foundation - Vasa Previa
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Author Topic: Vasa Previa Management Recommendations  (Read 2630 times)
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cbparis
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« on: November 15, 2008, 02:25:47 PM »

Vasa previa is up to 95% deadly for the infant.  Or it is virtually 100% survivable.  It all depends on that prenatal diagnosis and appropriate management.  The International Vasa Previa Foundation (IVPF) doesn't have a single case of infant death from vasa previa in its records when the recommendations below were followed.  Not one!  Studies show this management works.  Our records back it up.

The IVPF recommends

- Pelvic rest
- Hospitalization in the 3rd trimester, typically at about 30-32 weeks
- Delivery by C-section at 35 weeks
- Immediate blood transfusion and aggressive resuscitation of the infant in the event of a rupture
 
Pelvic rest means nothing in the vagina.  Nothing at all.  No sex.  No tampons.  And except for transvaginal ultrasound which has been proven to be safe, no digital exams.

Hospitalization by 30-32 weeks may seem like overkill, but our records show an increased risk of rupture during this time as the mothers body begins to prepare for birth.  Babies that rupture at home simply do not survive, no matter how close they live to the hospital.  That said, there are certain isolated cases of vasa previa which can be successfully managed out-patient.  This is very rare though. Most mothers begin effacing and dilating weeks before term. This puts a vasa previa infant at far greater risk of rupture. While hospitalization is definitely preferred, if the cervix is 4 centimeters or longer AND fetal fibronectin testing is favorable for out-patient management, it can be attempted safely.  Both these tests together are good indicators for uterine activity not commencing in the next couple of weeks or so.  Out-patient management should never be attempted without adequate results from BOTH of these tests together! 

Why 35 week delivery?  Because studies show this gestational age to have the highest infant survival rate.  Yes, 35 weeks is quite early.  And a 35 weeker will likely spend some time in the NICU.  But the simple facts of the matter are that it is far easier to manage prematurity at 35 weeks than it is to manage a vasa previa rupture.  Babies that rupture die within minutes, leaving only moments to deliver them, aggressively resuscitate them, and give them blood transfusions. 

So you are in the hospital now and waiting for delivery.  You can expect to have a round of 2 steroid injections to help your baby's lung mature.  You will be monitored more often for uterine activity as well.  Some doctors will do an amniocentisis at 35 weeks to check on the baby's lung development and will put off delivery until 36 weeks if this isn't accomplished and the mother is not having any uterine activity.  Most doctors however, simply deliver at 35 weeks without doing an amnio.  Regardless, we've never heard of a doctor doing a repeat amnio.  Its always better to get them out before the risk of rupture increases.  Sometimes uterine activity will result in a baby being delivered before 35 weeks.

The International Vasa Previa Foundation believes that infant death due to vasa previa is an avoidable tragedy.  IVPF recommendations are based on the consolidated results of science, technology, and its experience with thousands of vasa previa families.  Infant death and injury can be prevented when vasa previa is prenatally diagnosed and Cesarean section is performed at 35 weeks.
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<A href="http://http://ivpf.org/resources/resources.htm">Recommendations and Resources</A>
<BR><A href="http://http://SophiesWalk.org/walk">Sophie's Walk for Vasa Previa</A></BR>
<BR><A href="http://http://IVPF.org/education/questions.htm">IVPF research questionnaire</A></BR>
cherice
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« Reply #1 on: December 08, 2009, 11:23:05 PM »

I was recently diagnosed with vasa previa.  I'm 6.5 months pregnant, 38 years old, history of recurrent loss (4 in past 6 years) and no successful pregnancies YET.  My doctor told me that my baby looks good.  All tests so far have had postive results (nuchal fold screening, level II ultrasound, bloodwork, etc.).  I was extremely excited and finally confident about this pregnancy until this vasa previa diagnosis last week.  I also have an accessory lobe.  I return for another ultrasound next week.  I am anxious to follow these recommendations, but I'm not sure the best way to go about this with regard to the doctors.  I want to make sure that nothing falls through the cracks as it has so many times in the past. Please let me know of any suggestions you may have.  Thank you!
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cbparis
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« Reply #2 on: December 09, 2009, 12:25:47 AM »

Hi Cherice,

I have emailed you privately and attached some published medical documentation to take to your doctors. This documentation includes not only the IVPF recommendations, but also an important published study on vasa previa outcomes based on diagnosis and management, a paper on management published in the continuing education section of ACOG's Green Journal, and guidelines on vasa previa management published by the Canadian Society of Obstetricians and Gynecologists. Feel free to print them out for your doctors if you feel this is necessary. Soon vasa previa diagnosis and management will be standard of care. Until then people like us will have to be our own activates. As I mentioned in the email, we don't have one case of infant death from vasa previa in our records when it was prenatally diagnosed and appropriately managed. Not one! Congratulations on your diagnosis. This is literally the most precious gift you will ever receive.

Cindy Paris, IVPF Co-Founder, member Board of Directors
Mum to Nathan Elliot Paris   ^i^
http://http://NathanParis.com

Vasa_Previa email group:
http://http://groups.yahoo.com/group/Vasa_Previa
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<A href="http://http://ivpf.org/resources/resources.htm">Recommendations and Resources</A>
<BR><A href="http://http://SophiesWalk.org/walk">Sophie's Walk for Vasa Previa</A></BR>
<BR><A href="http://http://IVPF.org/education/questions.htm">IVPF research questionnaire</A></BR>
Amanda
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« Reply #3 on: December 12, 2009, 11:07:25 PM »

I haven't been diagnosed with Vasa Previa, but from the sounds of it I think I have it. I go to a specialist this Monday to find out more. I found out I have placenta previa when I was 19wks. I am now 25wks and this past thurday had an ultrasound and found out the placenta is bilobed and a blood vessel is right over my cerivix. My doctor never said anything about Vasa previa, but doing my own research it keeps pointing to this. I've very nervous but I see that early detection is the key.  I'm new to the site, so I'm not sure if I'm posting right. lol  As long as someone see this!!
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cbparis
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« Reply #4 on: December 14, 2009, 12:23:53 AM »

You are doing fine Amanda. Congratulations on your diagnosis! Yes, prenatal diagnosis and appropriate management is key. Not all doctors are aware of appropriate management though. Its a good thing you are doing your own research.
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<A href="http://http://ivpf.org/resources/resources.htm">Recommendations and Resources</A>
<BR><A href="http://http://SophiesWalk.org/walk">Sophie's Walk for Vasa Previa</A></BR>
<BR><A href="http://http://IVPF.org/education/questions.htm">IVPF research questionnaire</A></BR>
Lacy
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« Reply #5 on: April 24, 2010, 12:25:51 AM »

Hello I'm new to this site and I have a low lying placenta which the doctors may have caused Vesa Previa. I want to do my best to ensure that my care as well as my baby's is top priority. I emailed Cindy, the site admin. I think with a few questions I have I hope someone is able to see this and gets back to me. I'm really nervous about his situation.
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cbparis
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It only takes a moment to diagnose life...


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« Reply #6 on: April 25, 2010, 05:10:21 PM »

Lacy, the best place to get support and information about vasa previa and successful management is the Vasa_Previa email list at http://http://groups.yahoo.com/group/Vasa_Previa   There are literally hundreds of subscribers there who are or have gone through vasa previa pregnancies. I've also replied to you privately.

All the best,

Cindy
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<A href="http://http://ivpf.org/resources/resources.htm">Recommendations and Resources</A>
<BR><A href="http://http://SophiesWalk.org/walk">Sophie's Walk for Vasa Previa</A></BR>
<BR><A href="http://http://IVPF.org/education/questions.htm">IVPF research questionnaire</A></BR>
Rena
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« Reply #7 on: April 26, 2010, 01:37:13 PM »

Hi, I am 35 years old and 26 weeks pregnant with my first child.  I was diagnosed with VP at 24 weeks.  Actually, it was first discovered along with placenta previa at 20 weeks; however, by week 24 the placenta previa corrected itself and the VP became more apparent.  My doctor is waiting for my 28 week sonogram results to decide whether or not (or when to) hospitalize me.  She has already ordered the steroid treatment, so I am guessing we are going to move forward following the accepted VP protocol.  I have been on complete uterine rest since 20 weeks and am trying not to do anything that may place undue stress on my uterus. 

My big question that no one can yet answer is this:  How do you know when you've begun to bleed?  I was in the grocery store yesterday and felt a little wetness (which is normal with the increased discharge that comes with pregnancy) and it struck me that it felt just like the beginning of a normal period, sans cramping.  And, if the VP bleeding is painless, how would one know if they have begun to bleed - whether they are in the hospital or not?  If, from what I understand, time is of the utter importance, do you just rush to the restroom to check any time you feel anything? 

I think this is my biggest worry right now.  I've never spent any time in the hospital, and do not know how closely a patient is monitored.  I don't know if it will be acceptable for me to go to the restroom anytime I feel wetness.  Can anyone with experience tell me the flow feels - normal or not?  Does it start off slight, or will it just begin to flow heavily?

Please excuse the graphic nature of this question. 

Thank you in advance for any help you can give me.
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cbparis
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« Reply #8 on: April 26, 2010, 02:31:35 PM »

Hi Rena,

My response might be more graphic than your post. First of all, congratulations on your diagnosis. I am thrilled that your doctor seems well aware of successful management for vasa previa!

I must say though, that vasa previa is not placenta previa. Placenta previa bleeding is almost always maternal bleeding which means there is more time and it is less immediately threatening for the baby. Placenta previa bleeding can be slow, giving you time to get to the hospital to be checked and watched. Vasa previa bleeding is not this way. Typically it is a gush when the membranes break. (From my experience with hundreds of vasa previa women (and thousands of case reports), the membranes often break when the vasa previa ruptures rather than the other way around.) Your baby has an awful lot less blood than you do. There are a lot of difference causes of bleeding in pregnancy, but babies are compromised immediately when a vasa previa ruptures. This is why your doctor plans on hospitalizing you. Very few women are candidates for out-patient management of vasa previa. Because it is not uncommon for vasa previa to rupture as the cervix begins to thin and dilate in the last few weeks before term, they will give you the steroids and watch you closely for signs of uterine activity, probably with additional ultrasounds and perhaps daily non-stress tests. You will probably be delivered at about 35 - 36 weeks unless you have uterine activity of any sort, in which case you will be delivered earlier.

Avoiding that rupture is very important. Vasa previa WILL rupture at term if not before. Is is much easier to manage by hospitalization, watchfulness, and early delivery than a crash C-section, and aggressive resuscitation and blood transfusions for the neonate. The long and the short is that a little spotting would likely be caused by other pregnancy issues. Vasa previa bleeding is most typically sudden and quite profuse and painless as well. It also doesn't rupture until later in pregnancy when the cervix starts thinning and dilating and the baby gets bigger and begins to drop, or during labor and delivery, hence the reason most women are hospitalized at about 30-32 weeks and delivered at about 35 weeks. According to our records this management results in 100% survival. We've never seen a baby die from vasa previa when it was prenatally diagnosed and appropriately managed. I hope this wasn't more than you bargained for posting here, but when it comes to vasa previa, a little awareness makes all the difference in the world. It sounds like you are in awfully good hands, Rena. I wish you all the best.

Cindy Paris, IVPF Co-Founder, member Board of Directors
Mum to Nathan Elliot Paris   ^i^
http://http://NathanParis.com

(If you read Nathan's story you will notice that I ruptured at term. It is important to note here than I am one of the rare women who never effaces or dilates before term. I carried and delivered 5 babies (3 before and 1 after my vasa previa pregnancy). I never effaced or began to dilate before labor with any of them. This, of course, makes for very long labors. My doctor thought Nathan would arrive at least another week or two later. I never went into labor. If Nate had been born today and was prenatally diagnosed I would have been a candidate for out-patient management and a C-section at about 36 weeks. This is NOT the case with the vast majority of women!

The best place to get support and information about vasa previa and successful management is the Vasa_Previa email list at http://http://groups.yahoo.com/group/Vasa_Previa   There are literally hundreds of subscribers there who are currently going through or have gone through vasa previa pregnancies.
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<A href="http://http://ivpf.org/resources/resources.htm">Recommendations and Resources</A>
<BR><A href="http://http://SophiesWalk.org/walk">Sophie's Walk for Vasa Previa</A></BR>
<BR><A href="http://http://IVPF.org/education/questions.htm">IVPF research questionnaire</A></BR>
Rena
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« Reply #9 on: April 27, 2010, 11:39:38 AM »

Hi Cindy,

When I was diagnosed with placenta previa, I had been told I might experience a small amount or a large amount of blood loss.  Then I was told that the placenta previa corrected itself and was no longer a risk, but that vasa previa was now an issue.  I was not told what to expect in terms of blood loss from vasa previa.

Your response really helped, thank you very much.

Rena
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ashuhle
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« Reply #10 on: May 15, 2010, 06:48:45 PM »

I was dignosed Vesa Previa at 26 weeks I am currently 28 weeks and 3 days. But, I did have Placenta Previa and it corrected it self then I have Vesa Previa. I was addmitted into the hospital and my doctors are going to deliver me at 34 weeks. I have already done steroid treamtment. Being 16 years old and having Vesa Previa is highly dangrous I am told. I'm glad to hear that because I am in the hospital my baby has 100% chance of surviving (:
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